11th GTBAD Letter


October 22, 2008


 
            When does one ever expect the worst?  I know my family and I didn’t expect it eleven years ago having received that fateful call to head to Children’s to receive the worst possible news: the cancer had spread and I had three months to live.  Even more than that, we didn’t expect the worst this past January.  While things turned out for the best in the end, for a couple of weeks, we didn’t know whether I would be in a fight for my life once more.  As most of you know, I was having some bloating problems and went in for an annual checkup with my doctor.  When she decided to do an ultrasound, we weren’t thinking anything would show up.  But having spent more than half of my life in hospitals and doctor’s offices, my mother and father and I have become experts at knowing when bad news is about to hit.  Sure enough, my right ovary, I affectionately named Henrietta, was completely covered in cyst upon cyst and my left ovary, Henrietta’s twin Henri, had cysts on it as well.   I ended up having surgery to find out whether it was what we feared it was; whether it was cancer.  Henrietta had to be removed completely, but Henri had to stay due to the many complications that would arise with having a complete hysterectomy at such a young age and with more complications from hormone treatments that could cause more tumor growth elsewhere in my body.  Needless to say, Henri and Henrietta were not the harbingers of cancer we initially thought them to be.

            Like all the health issues and problems that I’ve faced hereto in my life, this past episode continues to teach me about faith and hope, love, family and laughter.  It shows me to continually remind myself the value of each day I have, and to be so very grateful of all that I have.  It hones my already wacky and sad to say morbid sense of humor (who names their body parts and continues to call them by those names with affection?), and it makes my family and I stronger as individuals and as a whole.  It is in the trying times of our lives that our truest selves are revealed, and hopefully knowing who you are deep down will make you strive to always be that person, or to change what you don’t like.



This is Mike. He shaved his head at the acutal Denver
St. Baldrick's event. I shaved two weeks later due to a wedding.
With the way that this year started, I was unsure of whether the rest of the year would be overshadowed by those first few months, and so I was unprepared for the excitement to follow.  In March, I became a published author in an on campus literary magazine.  The piece that was published was a short non-fiction story of my initial diagnosis as well as the basic story of my Glad to Be Alive Day.  Needless to say, I was shocked when I decided to submit the piece for publication and even more shocked when it got picked to actually be published.  Also in March, I made a bet with a friend/nurse of mine from the hospital, Mike, that if he would shave his head for St. Baldrick’s, I would shave my head as well.  It turned out to be a race to see who could raise the most money in two weeks.  More importantly, it was great to be a part of such an amazing event to help raise a lot of money for childhood cancer research.  Then at the end of May, I moved into my very first apartment.  Before I had surgery in January, I was planning to move into an apartment, but I ended up not due to the circumstances.  It’s been a learning process these past five months, and I can’t begin to verbalize the joy that I have gotten from living on my own.  My only complaint is that it’s lonely living by oneself, and due to the hectic life I lead between school, volunteering, family and friends I’ve not been able to entertain and have people over.
This was Mike's revenge when he shaved my head.

At the top of Vail Pass.
From left: Jordan, Travis, me, Austin, my Dad (Allyn)
            But by far the biggest thing that has happened to me this year is the Courage Classic.  The Courage Classic is a 157 mile bike ride that is the main fundraiser for the Children’s Hospital in Denver, the place where I have been treated since I was first diagnosed.   For the past three years, I have volunteered at the event  and envied the riders for the fun that they were having, and last year I was lucky enough to meet the Heare Family, Travis, an orthopedic surgeon at Children’s and his son and daughter, Austin and Jordan.  Travis offered to help get me out on a tandem by being what in the world of tandems is called the Captain or driver, the man on the front.  I was thrilled!  So imagine my surprise and excitement when Travis called in April and asked if I was still interested in riding; I replied with an enthusiastic “YES”.  When I mentioned my plans to my dad, he said that he would help out in any way to get me out there achieving another dream.  That same week he started researching bikes, bought one, and began an intense training schedule.  While I was not as intense as my dad turned out to be, I also began doing training rides on the weekend working up to doing 30-50 mile rides on the tandem with Travis, Austin or my dad.  It was tough to get back into shape since the last time I’d even been near a bike was ten years earlier, and I ended up having an episode where I was having trouble breathing and my heart was racing so bad that I thought I was having a heart attack.  But I knew this was something I wanted to achieve, so I kept riding.  And then came the time for the big event, and we went out giving it our all.  And all was what we ended up riding.  Starting in Leadville we rode from Tennessee Pass to Battle Mountain on into Vail then over Vail Pass into Copper on that first day.  Then on the second day from Copper to Breckinridge, then back on into Copper and on the final day from Copper over Freemont Pass then onto the Turquoise Lake loop and back into Leadville.  It was grueling, tiring, aching work.  It was perhaps the best time of my life.  A total of 139 miles for me, due to route changes, and 157 miles for my dad, and already plans are in the making for adding miles next year.

            So as you can see it’s been a very, very, exciting and eventful year so far.  I am astounded by all that has happened in such a short time.  It seems that this has been a year when I’ve really come to realize that if you want something you must go after it with all your passion and energy.  Some people think that achieving your dreams is just luck, but it’s more than that, it’s a belief in something that you want more than anything, something you are willing to work towards and sacrifice for.  Life is truly what you make it.  I’ve been blessed with people who are willing to help me achieve my dreams, and I can only hope that I will be able to give back in the years to come for all that I have been given.

Happy 11th Glad to Be Alive Day, everyone!  Celebrate like we haven’t celebrated and continue to believe in the hope that each day brings.  Dream big and believe in those dreams, so that they too can become a reality.  Go out and conquer your own mountains.  And remember:

The mind determines what’s possible.  The heart surpasses it. – Pilar Coolinta



For the original version of this letter, click here.

Below are more pictures from both St. Baldrick's and the Courage Classic:

Finally bald. Wait why does Mike have hair? ;-)

Austin and I on the tandem.

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